Babies are hard.
I guess I knew this ahead of time, but you never REALLY know until you’re doing it. You have to come to terms with the fact that this tiny human owns you.
Cancer is hard.
Something, I also knew. When Joe was first diagnosed I remember him begging me not to marry him, not to do this to my life. At the time I didn’t understand what he was talking about. Now I do.
What I never was prepared for was dealing with a baby and cancer together. Now I realize, we’re dealing with the real double whammy over here.
Joe cracks Mira up with a few clicks of his tongue and he goes crazy over every new thing she’s learning. Yet, there are days those simple joys are hard for him to even muster up the energy to enjoy.
This week has been a rough one. Joe’s pain has been unbearable and it’s forced him to spend a lot of time in bed.
Mira started teething. Oh, yea and our dog got worms. I honestly thought I was being punked.
These regular life things are magnified when you’re dealing with cancer. Your plate is already full and it’s hard to make room for normal times.
So, it was all hands on deck. My parents took Wrigley to the vet. Joe headed off to the oncologist by himself. His mom headed downtown to pick up his meds. I stayed home with the queen of cranky and my grandma folded our laundry.
We had three sleepless nights of teething, fevers and Mira’s first real cold. The coughing and runny nose just about broke my heart. And who knew how hard it was to squirt Tylenol into their little pinched up mouths?
By Friday, I was cooked– overdone— burnt.
Thank goodness it’s Grandma Doreen’s day to babysit. I almost didn’t go anywhere because I felt guilty leaving her with a sniffling baby. Joe was passed out upstairs dealing with his own insomnia plus the added bonus of a baby in our bed all week.
I told Joe’s mom I was going to workout. I was running errands. I was, you know, doing very important things.
My head was spinning with all of our stress as I headed into the parking lot towards Babies R Us for formula. That’s when my plan went array.
Something else caught my eye.
A sign for a $49 massage. I was on a top-secret, undercover mission as I slid in the door to get an appointment. They could get me in but it’d be a couple of hours. I don’t know why I felt like this “me” time had to be so kept quiet. I guess I felt like there was too much to do, too much to deal with.
Clearly, I let all of that go quickly as I found myself across the street at a Mexican restaurant alone and ordering a skinny margarita. (Sidenote, I will order anything with the word skinny in it. Skinny burrito, Skinny ice cream…)
Two skinny drinks and a large order of chips and salsa later and I was starting to feel like myself again. Or a slightly, buzzed version of myself.
I paid with the cash I had leftover from our cruise so there was no paper trail. I suddenly felt like I was having an affair with my fish tacos.
Next, I went in for my massage and spent 50 blissful minutes with a man named Demetri. I text my mother in law that I was just leaving my workout and I’d be home soon.
I sang all the way home. I let my shoulders press down and away from my ears.
I pulled in the driveway and got a call from Mira’s doctor that she wanted to see her before the weekend since she still had her cough. I was re-freshed and back in action and you better believe I got that baby to her appointment in 20 minutes flat. ( I was sober at this point, please don’t call DCFS.)
This supermom stuff is hard. This cancer stuff is harder.
It truly takes a village… and a margarita.
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So, so sorry for the hard days. Praying all of you have a better week……hang in there.
It’s so important to take care of yourself, you did the right brave thing!
Hi my name is Susan . I have a granddaughter also named Mira…miracle. My daughter , Liz, had cancer when she was pregnant. Mira was delivered 10 weeks early so Liz could get chemo for her cancer. She went into remission only to get the cancer back. In December 2012, Liz had a stem cell transplant. She is doing great now as well as Mira, who is 3. Your daughter is beautiful. I pray for Joe everyday. May God bless you and your family.
You are amazing! Emily is a good baby and I have a husband and family in town and I’m still exhausted. You are super mom!
Hi Amanda! We’ve never met, but I went to high school with Joe. He was in the same grade as my brother and my best friends’ brothers and I remember him always being a genuinely kind person…not something you can say for a lot of high school boys 🙂 I’ve been following your blog for awhile now and I just had to leave you a note. First, our family is sending you love and prayers every day. Second, you (and Joe) are incredibly talented writers. Your ability to convey your feelings, express the gravity of your situation, and yet keep a sense of humor about everything is truly inspiring. Thank you so much for sharing your story with all of us. Finally, congratulations on the birth of Mira, she is gorgeous…a perfect blend of the both of you. I wanted to tell you that I am so happy that you took some time for yourself this weekend. I remember there would be times after I had my first son that I would leave the house and go sit at Applebee’s (I know, gross…but it was the closest and cheapest restaurant) and have a glass (or more!) of wine just to get away from it all. Now I plan my escapes more wisely and am sure to pick up a copy of Us Weekly and find the restaurant with half priced glasses 🙂 The point is, the escape is so important. Being a mom is overwhelming, and like you said, you have a double whammy. There are a lot of adjectives I could use to describe being a mom and many times the negative ones outweigh the positives! I know this is a crazy long message, but I just wanted to let you know that I’m glad you had a few moments to recharge; I know how important those moments are. And I’m there with you. When you are exhausted and awake in the middle of the night with your eyelids closing rocking that beautiful baby girl, there’s a good chance I’m awake too, thinking of all of us mommas. In this together. You are an inspiration. Thank you for touching my life.
Sending Much Love Your Way,
Alyssa Yamamoto Sewart
It’s okay not to be okay……………..My most favorite line in 62 years.
super Amansa, NOONE not even you knows what it will take to make it sanely through lifes struggles! But good, wonderful, focussed on doing what is right (like you) will make it! no matter how tough the struggle there is always a light at the end of the tunnel! Just sometimes the tunnel has a curve in it that prevents you from seeing the light! You must realize & believe even though you can`t see it, the light is there & no farther away than before! The positive are many, think of those when things get to you like all the help from friemds & relatives, your wonderful husband & daughter,even when they`re sick you still know they are a positive to you! I`m always inspired by your courage! Thanks!
you are an amazing writer and i would be laughing hysterically out loud at this post, if i wasn’t crying too hard instead!